The foundation believes that most people wish to be fair and unbiased and that most discrimination of the handicapped is more a lack of education than a malicious intent. Communication and education are keys to changing the perceptions of those who discriminate.

2. To accumulate and to publish news on various treatment options for parents and caregivers of children with Cloverleaf Syndrome - and more broadly - children with any craniofacial related condition.

The information will be organized in such a way that it will provide a user friendly resource. The foundation's intention is to publish all appropriate information without bias, noting reported positives and negatives regarding the treatment options

Alexander Schon's parents have faced multiple financial challenges in trying to provide the best options for their son to improve his quality of life. At times it has seemed like health insurance policy decisions provide such limited options for the care of a Cloverleaf Syndrome child, that they have been forced to make decisions in favor of Alex’s well-being that have had a devastating impact on their personal finances.  It’s a vicious circle that severely compromises their ability to properly obtain continuing quality care for Alex. Richard and Terri know that most parents and caregivers of children with Cloverleaf Syndrome or other types of craniosynostosis face these kinds of decisions on a daily basis.

Motivated by this knowledge and experience with Alex, it is a goal of the foundation to help parents and caregivers of other children with Cloverleaf Syndrome or other types of crainiosynostosis. Financial assistance through 501C foundations (hospitals, schools, etc.) is one way to help.