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Grand Blanc, MI 48439

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The Schon family has spent countless hours researching Alex's condition, and in their research have come upon many helpful links to Websites.

These links and sites are meant to be a knowledge base, a possible starting point for others, and just all around good information. Even though we have found this information helpful in our research, we feel that others need to use their own decisions in deciding what is and isn’t helpful.
 Cloverleaf
   
·  Ultrasound Cloverleaf Skull pictures
·  Cloverleaf skull or kleeblattschädel
·  Craniosynostosis: cloverleaf skull
 Craniosynostosis
   
·  Craniosynostosis Syndromes (FGFR-Related)
·  Craniosynostosis: cloverleaf skull
·  Craniosynostosis
·  NINDS Craniosynostosis Information Page
·  Cranioysynostosis Support
·  Pediatric Neurosurgery - Craniofacial Anomalies
·  Children's Craniofacial Association
·  Craniofacial webpage
 Epilepsy
   
·  Epilepsy.com: Epilepsy information
 VP shunts
   
·  Ventriculoperitoneal Shunt
·  Medtronic Neurosurgery, Shunts
 Hospitals
   
·  Miami Children's Hospital Pediatric Healthcare
 Chiari
   
·  Chiari malformation
·  Chiari Malformations and Syringomyelia
·  Management of Chiari Malformation
·  Spinal Disorders & Diseases
·  The World Arnold Chiari Malformation Association
·  American Syringomyelia Alliance Project
 Schools
   
·  The Princeton House Charter School
 Disabilities
   
·  NICHCY Home
·  The National Organization on Disability
 Miscellaneous
   
·  Let's Face It
·  Faces
·  March of Dimes Home Page
·  Maternal Children Help Library
·  Parents Helping Parents
·  Fathers Network Welcome to the Fathers Network
·  Forward face
·  Medtronic, Inc
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