Message from our President

This Foundation, which is inspired by Alex Schon who was born with Cloverleaf syndrome, was started in 2003. Since then, with the help of several family members and numerous great volunteers and big-hearted donors we have been very privileged to help make life better for various parents and their children. Recently, I got an email from a parent whose daughter was born with Pfeiffer Syndrome. He told me with the medical bills piling up and the fact that he lost his job, he was just asking for a little help. It was heart breaking, but because of the foundation, we were able to help catch up his bills for his daughter’s medical care and hopefully give the family room to get back on their feet...Read More