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PO Box 584
Grand Blanc, MI 48439 |
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| Cloverleaf Syndrome |
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Kleeblattschadel
Deformity,
or cloverleaf syndrome is a type of craniosynostosis in
which there is premature closure of multiple or all bones
of the skull (sutures). This condition causes the
head to form a cloverleaf shape. The head may be larger
than normal due to accumulation of fluid (hydrocephalic)
in the skull.
The anomaly has been
reported to carry dismal prognosis both in terms of
neurological outcome as well as cosmetic appearance if
treatment is delayed.
Facial malformations
include high forehead, severe proptosis, or
exophthalmoses, beaked nose, and downward displacement of
ears.
Multiple breathing and
feeding issues may occur. |
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"Most of the important things in the world have been accomplished by people who have kept on trying when there seemed to be no hope at all."
--Dale Carnegie
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See
Alex's Story - "The Miracle Child"
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| Alexander's Story |
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Alexander Schon was born with Cloverleaf Syndrome on May 26th, 2000 in
Orlando, Florida. From the beginning, he has
astounded his doctors (but not his parents) with
his spirit, his ability to withstand numerous
surgeries, and his unique and sunny personality.
As always, with a
Cloverleaf Child, the caregivers must sort through
conflicting opinions, financial options,
quality-of-life considerations.
For more on Alex's
Story and to follow Richard and Terri's progress
in arriving at the best course of action for Alex,
click here. 
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